We have had all kinds of germs attacking our house.. two GI viruses and two respiratory viruses. Not everyone got each of them but I especially was knocked down by one of each.
In April Luke came out for regular appointments. He had a cough for a couple of weeks and generally wasnt doing great. His PFTs dropped by 50%. There was concern he was showing signs of rejection. Two weeks of antibiotics were prescribed. We came back two weeks ago for repeat PFTs and a bronchoscopy. Thankfully his PFTs were back up to his normal and his bronch looked good. So incredibly thankful for that!
On Monday afternoon Luke developed a high fever. His pilot, Joe, from Wings Flights of Hope got us out to Pittsburgh very quickly. I was so sure he had bacteria in his blood. We have been here two and a half days and no bacteria has grown from his blood cultures so we are headed home.
We had plans to spend two nights in Chincoteague Island, VA this week as a family get away. It is something that has been on my bucket list. Since I found a great deal on Groupon, we were unavle to cancel since Luke got sick less than 72 hrs before the trip. Glen ended up taking the kids yesterday evening because everyone needed get away time. We are very thankful that Lukes pilot Joe will be able to get us home today abd Luke, my mom and I will drive down once we get home.
This is our shortest stay ever, but so thankful for all the amazing nurses we love so much cared for Luke. He had some of his favorite dogs visit and was able to go to the annual hospital Prom last night.
some pictures to catch you up to today:
In March we adopted three cats from the shelter. This Is Luke meeting his cat King Tut.
We got away for a night to Great Wolf Lodge in March for a well needed family time.
King Tut has been an amazing cat for Luke. Snuggling at night...
A quick ER stay in March when Lukes GJ tube broke and had to be replaced.
schoolwork... It has had its ups and downs.. King Tut also supervises Luke during schooltime.
A service project with Boy Scouts
Bowling with scouts after earning merit badges and his scout rank.
Luke was asked to be part of a Donate Life celebration for Organ Donation Month. He raised the Donate Life flag at St Lukes Hospital (where he was born).
Easter Sunday
After the egg hunt
Out to Pittsburgh in April.
This set of PFTs was concerning
Lukes amazing transplant pulmonologists.
Pre prom pictures with his special friend Devon
finally had his first overnight tent camp out with his Boy Scout troop.
Miracle League baseball started up
successfully set up his tent
All packed for one night (with 3x as much as Logan)
Logan and Luke practicing their tent skills.
Back out to Pittsburgh two weeks ago
Puzza and Guardians of the Galaxy after his bronchoscopy.
Monday night.. high fever, retching, rigors, feeling horrible
Pilot Joe to the rescue... Wisked us out to Pitt
Lukes special doggie friend, Ike
Making crafts at the prom
wiped out from tue prom!
Happy to have grown enough to try out Gregorys bike last week.
Grandpa helping him with baseball skills last week.
Video games with his friend, David (a volunteer at the hospital)
