I continue to be so incredibly thankful for Luke's nurses. They seriously are the front line of Luke's care. They are the first to know something isn't right. They are the ones who advocate for what he needs. They pick up on the little things and know when he needs something. I am so thankful for his nurse today. She has been a special part of Luke's healthcare team at Childrens since Sept 2011. Because he wasn't acti.g right she drew blood from his port and after a bit of convincing the resident ordered the labs she requested. They came back and his potassium was really high. After a meetingdeciding what to do next, Luke was admitted to the PICU to be treated and get his potassium down. His EKg (electrical conduction tracing of the heart) was showing changes.
Luke wasn't happy to be back in PICU. ICUs are hard for Luke. Right now he is sleeping and talking in his sleep... Had dreams are always a part of his ICU stays (his PTSD from transplant time/CICU time is what causes this). He was given LasiLasix (to make him pee out the potassium), albuterol in big doses/insulin/glucose to get the potassium back in his cells, and k exelate to make him poop out the potassium. They worked and his potassium came down to an acceptable level.
The plan is to go back to his floor tomorrow and have the pulmonary team manage his care. They have always in the past and even though his lungs are often the least of our worries (except preserving the health of his new lungs of course), they do a great job of coordinating his care between all the specialists and seeing Luke as a whole .
As Luke continues to prove, he is very complex and needs many specialists on board. I always have the most respect for those doctors who say we are not really sure what is goin on or even the works I don't know. After all the best doctors in the country all said it about his lungs. There are so many things that are not clear about Luke... It isn't a sign of weakness to admit that... It is a sign of honesty .
His belly isn't good today and he has only had a few sips of water. Praying that once his electrolytes get back to normal his belly will wake up some more.
Logan camping this weekend with Boy Scouts
hmm.. this may be messy
Ok she is getting deeper into mess
yup there it is.. all over her hands and arms, all over her shirt, and all over the floor... Well some on the paper too.
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