feeling horribleMonday evening he continued to feel horrible and started to work to breathe again. So we hooked up a bag to drain his intestines from the feeding tube in his intestines. Within 5 minutes a half of a liter of horrible looking stuff came out and then over an hour following another half liter of fluid. So over the course of the that 24 hours almost 3L of fluid all together came out of his stomach and intestines. That seems so crazy! A belly xray was done and showed his intestines diwere not working. There was talk of inserting a new tube down his nose into his stomach, but thankfully that plan was aborted! Only essential (transplant meds) were given through his intestine tube and all other medications were held or switched to IV form. He was 'retching and so uncomfortable. His breathing became less labored and at the 24 hour mark there was no bacteria in his blood. His epidural had to come out as it was the fifth day in.
feeling a little better that evening after all that fluid was out of him.
Tuesday am he woke up and actually woke up. We played some board games. He did a very little bit of school. He actually got out of bed and walked a mini lap around the nurses station. He was finally looking better. He has d his cather taken out (I was very anxious to get it out so he would be forced to walk to the bathroom and start moving again). Luke was started on IV nutrition because it looked like this was going to take a longer time then everyone was hoping for.over the course of the day Tuesday what was draining out of his stomach looked better and better. His surgeon told him he could have hard candies, lollipops, or gum. I know his intestines were still asleep because he only had one hard candy all day. Antibiotics were continued and pain medicine continued through the IV. He had to have his needle in his port changed so he even got a shower. It wasn't his usually Power Shower and it took a lot out of him but he got one.
playing star wars Trouble
Cars 2 Monopoly
a tiny bit of school
A mini lap around the nurses station
Wednesday again he woke up and was feeling much better. His breathing is much more relaxed . He continues on the oxygen, IV pain medication, and anti nausea medicine. Today he walked a full lap around the unit with PT. More board games and one subject of school were done. Tonight he took a second lap around the unit! Today he ate two hard candies, so maybe his belly is doing a bit better. The antibiotics were stopped since the blood cultures are still negative and he has been on them a total of 7 days. We stopped draining his stomach today in hopes maybe tomorrow he can start drinking some clear liquids.
after his sesecond lap tonight
exhaustedTomorrow I have to drive home across the state to work Friday then will return on Saturday. One of the hardest things I ever have to do is leave Luke here in the hospital to go home and work. I am so thankful for his amazing nurses who know when something new is wrong and care so much for him.
Please pray there are no issues while I am gone. Please pray his intestines continue to wake up and that he does not get any infections now that he is off antibiotics. Please pray for his transition back to working his body hard to get back in shape and for his transition back to doing schoolwork. School has really been a challenge for Luke this past month and we could use extra prayers for him to get school done each day.
Kyara working on school
Nana and Elijah getting in a nap
Makayla snipping.. her favorite activity
More snipping
the Aviary brought a painting parrot to the hospital. The girls loved the show. Kyara especially. She is already counting down the years until she can volunteer at he National Aviary (when she is 14).
the girls in front row seats
Penny the painting parrot
Makayla showing off her snake she made at the after school jungle animal program
No comments:
Post a Comment